About the study Personalized Parkinson Project
In the Personalized Parkinson Project 650 Parkinson’s patients will be thoroughly examined over the course of two years in order to gain insights into the disease at an individual level and potentially provide a foundation for new, more personalized treatments.
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Study objectives
The primary objective of the study is to perform a set of hypothesis-driven analyses on the study data set, aiming to correlate established biomarkers (obtained clinically, from brain MRI, from CSF, from known genetic factors, and from monitoring of biosensors signals) to the rate of disease progression, and to responses to treatment (both pharmacological and behavioural, such as participation in exercise). The secondary objective of the study is to evaluate the Verily Study Watch, to assess how this device could provide information about the function of patients with Parkinson’s disease. Additionally, this cohort will serve as a source of data that can be accessed by qualified researchers worldwide.Sharing data worldwide
The research data will be securely stored and shared with researchers worldwide using an advanced method called PEP (Polymorphic Encryption and Pseudonymisation), developed by Professors Bart Jacobs and Eric Verheul of the Digital Security Group at the Institute for Computing and Information Sciences at Radboud University. This method makes it possible to store research findings securely, while maximally guaranteeing the privacy of the participants. The PEP-method also makes it possible to share pseudonymised research data with other leading researchers around the world.-
PPP UpdateAn update on the progress and results so far, news about the study, and a prognosis9 October 2019
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Long-term adherence with wearing a multi-sensor watchPoster presentation International Congress of Parkinson's Disease and Movement Disorders 201930 September 2019
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Initial findings first study Personalized Parkinson ProjectThe researchers of the first study that uses data of the Personalized Parkinson Project present their initial findings25 September 2019
Participant assessments
Participants are invited to come to the study site in Nijmegen three times, during the 2Â years of follow-up, for a full day of data collection. Additionally, they collect data at home.
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Contact
info@parkinsonopmaat.nl490 participants
Currently 490 participants have started with the study. 250 participants completed their first follow-up visit and 56 participants completed their second follow-up visit.
Project team
